What
is your family background?
I grew up in a small Greek community in Krugersdorp. Our family
circumstances were modest: my father kept the local tea-room and later
was a bookie’s clerk. He never knew his own age. I joined the Congress
of Democrats as a medical student at Wits. Once I had graduated the
Special Branch intervened successively to have me dismissed from jobs
at the Queen Victoria clinic in Johannesburg, Baragwanath hospital and
King Edward VII hospital in Durban. I ended up at McCord Zulu Hospital,
a missionary hospital where the Special Branch’s writ did not run.
McCord was unusual because it paid black and white doctors the same
when others paid whites more. I remember once the minister of health
being asked why white doctors should be paid more for exactly the same
work, and the reply was that whites had a higher standard of living to
maintain! The logic of apartheid.
You are in trouble again even in the
new South Africa. A disciplinary tribunal recently found you guilty of
bringing former health minister Dr Nkosana Zuma into disrepute because
you said she should be charged with manslaughter for refusing to
provide the drug AZT to pregnant women with HIV/Aids. You have been
fined R1000 and warned not to behave unprofessionally again. Meanwhile,
the Human Rights Commission has taken up the complaint you lodged with
them last November that the government’s policy on this issue is a
violation of human rights. Why do you feel so strongly about
it?
It stems from my daily experience since I returned to South Africa in
1990, working first in Umtata, where I ran 11 rural clinics and taught
at Unitra medical school, and now as the head of the public health
department at Cecilia Makiwane hospital in Mdantsane near East London.
Already many of the children’s wards in the province’s hospitals are
filling up with Aids cases. One paediatrician I know says he can only
admit an infected child once. If the patient returns with a new
infection, as they invariably do, all he can do is send the child home
with some medication for the mother to administer. There just isn’t
space for them all. Most will not survive beyond the age of seven — and
that is the heart of the matter.
I first saw research results which showed how cost-effective AZT would
be in reducing mother-child transmission of HIV in October 1998 and
wrote many letters to the press and made statements as the PAC’s health
spokesman advocating its use. But despite the fact that the lives of
some 30,000 children a year could have been saved if their mothers had
been prescribed AZT in the last weeks of pregnancy, Zuma simply said it
was too expensive. Even when Glaxo, the manufacturer of the drug —
which had already reduced the price by more than 70 per cent of the
world average — offered to go even lower, she didn’t take it up.
President Mbeki switched the argument
away from cost when he told the National Council of Provinces in
October that AZT might be toxic and a danger to health. He has sowed
doubts. Shouldn’t it be tested further?
The president went against the overwhelming weight of scientific
opinion when he said that. AZT is not a new drug; it has been around
for about 30 years and was accepted by our Medicines Control Council
(MCC) more than ten years ago. It is available in all public hospitals
in case any nurse or doctor scratches themselves with a syringe from an
HIV positive patient. AZT is not a cure, but it does slow down the rate
at which the virus replicates itself. Like all powerful drugs it can
have unpleasant side effects, but these occur almost entirely among
those who are taking the drug for more than a few months. However, it
is not a drug that you should just prescribe and leave the patients to
get on with it. As with chemotherapy for cancer they must be carefully
monitored so that if side effects do appear they can be countered. This
is why I want to see the drug administered within a well-organised
national screening programme which would test all pregnant women for
HIV/Aids and give them counselling — we could train thousands of
unemployed matriculants to be counsellors. Those who tested positive
would be offered AZT before the birth, and formula feed afterwards, if
they have access to clean water, since breast-feeding can also transmit
the virus to some extent. Rural women need special attention in this
regard.
This would be more than a treatment programme — it would be a huge
public education exercise in Aids awareness that could reach a million
women a year. The saying "When you educate a woman you educate the
nation", is true. The total cost of such a project I estimate would be
about R90 million a year, the drug itself accounting for about
one-third of that.
When Dr Manto Tshabalala-Msimang took
over as health minister in June last year, it looked as though
government policy might change. What happened?
She really gave that impression when she said she wanted to revisit
the whole policy on AZT. She went to Uganda and came back very
enthusiastic about the new anti-retroviral drug nevirapine, which is
much cheaper than AZT. But since then she has just confirmed Zuma’s
policy. I think the president’s remarks to the National Council of
Provinces took her completely by surprise but, of course, she has to
support him. She asked the MCC to look again at the risks and benefits
of AZT and when it concluded in two further reports that the benefits
outweighed the risks, she rejected the reports as unsatisfactory.
Apparently she is now studying more reports, but has made none of them
public.
Following my complaint, the Human Rights Commission wrote to
Tshabalala-Msimang asking her to explain how she was defending the
rights of HIV positive women. After a delay, the health department said
it had not received the HRC’s faxes, though the commission says it has
proof they were sent. She eventually sent a 16-page reply. In it she
now claims that AZT is a potentially toxic drug. The HRC has asked her
to enlarge on her response.
I have suggested that one rationale for refusing women AZT is that the
government doesn’t know what to do with all the Aids orphans. If it
refuses anti-retroviral drugs to pregnant women then many of those
children will die before they are seven and the country won’t have
quite so many orphans. Tshabalala-Msimang said these remarks were
"insulting and defamatory". In fact I think that, as Zuma always said,
cost is the real reason behind the refusal. It does not fit in with its
Gear policy, which demands an immediate reduction in social
expenditure. The government is frightened that if it starts to provide
anti-retroviral drugs to pregnant women it won’t be long before women
who have raped will demand them, and then the four million or so people
who are HIV positive but who cannot afford the drugs. There’s no way
the government’s economic policy can accommodate such
expenditure.
Besides the cost, Zuma also argued
that the policy would be wasteful because only about half of all HIV
positive mothers pass the virus on to their child. Thus you would be
exposing the other half to a potentially dangerous drug quite
unnecessarily.
We do this kind of thing in public health medicine all the time. All
mass vaccination programmes are undertaken in the knowledge that only a
proportion of the babies vaccinated would have got measles or polio.
And the vaccination itself carries a risk. Recently two babies died
after being given the whooping cough vaccine. It is a matter of
weighing up risks and benefits and the public should always be fully
informed about them.
Could nevirapine provide the
government with a way out of its dilemma?
Nevirapine is one-tenth of the price of AZT and pregnant women would
have to take only one dose. Compliance is therefore much easier than
for AZT, which has to be taken twice a day for about four weeks.
However, a large comparative trial in Uganda has shown that its
toxicity is similar to that of AZT, so logically the president should
apply the same "danger to health" arguments to nevirapine. The World
Aids Congress is taking place in Durban in July and I predict that,
before it starts, the government will announce there that it is making
nevirapine available, but strictly limited to pregnant women who are
HIV positive. If they don’t they are in serious danger of being
attacked and embarrassed at that conference.
One thing is clear — this epidemic is still in the making and none of
the government’s measures so far have done anything to curb it. It
calls it a "fight" but it’s a war. The minister herself has admitted
that six out every ten admissions to hospital are Aids-related, but so
far she too has failed to declare war on the disease. I remember how
whites used not to bother about diseases such as TB which affected the
black poor, until they finally realised that they could affect them as
well. Sometimes I think the ANC elite feels just the same about Aids
and it is all part of a massive sell-out of the interests of the black
poor.
What about the new National Aids
Council?
It’s a completely useless body. None of the important Aids researchers
or specialists are represented on it, but it has 13 government
ministers and almost no budget except an expense account. There will be
committees at provincial level and task teams. But is only an advisory
body and not a war council with the resources and power to act. The day
after it was launched I set up the Shadow National Aids Council (SNAC).
I shall be sending out regular e-mail bulletins to academics, research
workers and activists in the field about NAC’s "progress". I’m also
planning a website.
Considering what some public sector
employees get away with, the provincial health department was quick to
prosecute you.
That is true. But the ANC hates embarrassment of any kind. The former
MEC for health here in the Eastern Cape, Trudy Thomas, was replaced
after the election last year because she had made an honest speech
describing the dire state of the provincial health service. The new MEC
for health, Dr Bevan Goqwana, has loyally supported the government on
AZT. He has also attacked me as one of the "foreign doctors recruited
by homeland governments", though in fact I am a South African citizen
who never worked for a homeland government. It was just a way of trying
to say I was a white reactionary. But privately many ANC supporters are
sympathetic to my cause. I have been amazed by the number of e-mails I
have received from people taking my side on this issue.
Are you appealing against the
verdict?
Definitely. Senior counsel Gilbert Marcus has offered to take up my
appeal against the disciplinary tribunal’s verdict and the Freedom of
Expression Institute is assisting financially. When I made my remarks,
which were reported in the Daily Dispatch on April 15, about taking
Zuma to court and charging her with negligence and more, I was inspired
by the case then going on in France. Three ministers, including the
former minister of health Edmond Herve, were prosecuted for
manslaughter for allowing Aids-tainted blood to be used in transfusions
in 1985 although a new blood screening test was available. As a result
dozens of haemophiliacs died of Aids-related diseases. Herve was
eventually found guilty of two cases of negligence. I was actually
speaking during the election campaign as the PAC’s secretary of health
and welfare, and my appeal will establish how far a public servant can
speak out. Do the bosses have the right to say you are a public servant
24-hours a day and restrict you totally? All I wanted to do was to
exercise my rights as a citizen to bring a suit in court and then to
allow the judge to decide. Secondly, we want to establish that I am
right to pursue AZT treatment for pregnant women and that toxicity is
not a reason to deny the treatment.
What changes have you seen in
community medicine since your return to South Africa?
I’m not trying to make a political point when I say that primary
health care in the Eastern Cape has largely got worse. I’ve seen a
static service where attrition has set in. The government is proud of
the number of new clinics it has built, but building is the easy part.
They don’t say how many have access to ambulances, how many have had
their phone, electricity and water cut off or have seen their drugs run
out. Maintenance has been completely suspended at my clinics.
Clinics are a basic facility where patients are seen by nurses and
only very seldom by doctors. They provide ante-natal care and family
planning, immunisation programmes, look after the chronic sick, etc.
Their quality has not improved in line with what the government wanted
and community participation has not developed. We used to have a clinic
committee meeting for community representatives at the hospital every
month. It was very successful. They could tell us what was wrong with
the clinics and we would hear their complaints. But the province
stopped paying their taxi fares and so the representatives stopped
coming.
I have just ordered one hundred 25kg bags of soup powder at my own
expense — R169 a bag — to give to the TB patients at one of my clinics.
It will be enough for 20 patients for a month. The soup is very
nutritious and since the health department slashed their nutritional
supplements we know they aren’t getting enough. One nurse made a very
big fuss about this. It won’t be difficult to distribute because the
patients will be coming to the clinic regularly anyway. I’ll carry on
with the scheme as long as my overdraft can bear it.
The number of nurses is declining, as we cannot replace those who
leave and their morale is very low, especially since their rural
allowances were taken away. They had to give up their right to strike
without getting anything in return, and now they have even more
responsibility. Community health workers are also disappearing, leaving
the clinics with no outreach. The gap between the private and public
health services has grown wider than ever. I don’t believe in
abolishing private medicine, it often sets standards, but I am totally
in favour of strengthening the public sector.
What is your political history and
why do you remain in such a small party with a history of
splits?
I was one of those arrested in the mass raids of July 1964 that led up
to the Braam Fischer trial. I was charged with membership of the
Communist Party and furthering the aims of the SACP and the ANC. I got
two years jail for that and when I came out in 1966 I was banned and
couldn’t get a job. I was also refused permission to study public
health at Wits. I left for England on an exit permit in October 1968,
two months after the Soviet Union had invaded Czechoslovakia. My
comrades in London, such as the Bernsteins and Sylvia Neame, were busy
justifying this, saying that a democratic Czechoslovakia would be a
dagger pointed at the heart of the Soviet Union. I was disgusted and
soon left the party. After that, I mixed with other ANC dissidents, met
black consciousness people, was always very pro-China, and was even a
member of the Green Party for a while.
But it was only when I met up with the PAC representatives in
Nottingham that I found a political home and joined them in 1982. Many
of the ANC exiles I met weren’t badly off, they could send their kids
to school in Cuba or East Germany, they got a lot of help. The PAC was
quite different; they were scratching around to stay alive. I am a
socialist and Pan Africanist and aim to establish a socialist and
democratic united states of Africa. Robert Sobukwe, the party’s
founder, said that "there is only one race to which we all belong and
that is the Human Race".
It’s true that last year’s election result was no better than 1994
even though we’d had five years to prepare. There is still no clarity
in the leadership about how to create a modern political party. At our
congress in April, I expect to see changes emerging. We need to be a
radical alternative to the ANC — a party that will attack Gear,
globalisation and privatisation. The PAC’s splits have been very
public, but even big parties can have the same problem — keep your eye
on the ANC over the next few years. The ANC alliance is showing cracks,
with Cosatu speaking out and the SACP rank-and-file unhappy at their
mealy-mouthed leaders. Their top guys know they depend on the ANC for
their positions and they want to stay on the gravy train. I’d rather be
in a small party than sipping the people’s gravy.
Do you ever regret returning to South
Africa?
I have the occasional twinge of regret, but overall I didn’t enjoy
living in England that much. I belong in Africa and have become an
African. I am due to retire next year. I had hoped to retire earlier as
I have diabetes, but while the AZT case is going on I can’t because the
government might regard it as a victory. The campaign I’ve launched on
this question has attracted enormous support from all quarters and I
really can’t imagine backing down now. It’s like the struggle against
apartheid. I was found guilty and jailed for fighting against that, but
I couldn’t imagine stopping the struggle against apartheid because it
was a just cause. I feel exactly the same about Aids. My cause is just
and I have no option but to continue.